SHARED CARE PROTOCOL FOR THE PRESCRIBING OF CLOZAPINE

1. Summary

Clozapine is an atypical antipsychotic used in the treatment of people’s schizophrenia who have had an inadequate response to at least two other antipsychotics, or who cannot tolerate the side effects of these. There is a small risk of neutropenia, the detection of which is achieved by regular haematological monitoring through the Clozaril Patient Monitoring Service.

Until recently the drug has only been available from a hospital pharmacy, however shared care with general practitioners has recently been introduced for those who have been on the drug for over a year with satisfactory blood results. As patients on clozapine are living in the community it is appropriate that their general practitioner should be involved in monitoring their care if their mental state is stable.

2. Introduction

Currently clozapine is rarely used. FFFFFFFF Healthcare Trust have a budget for (n) patients to be treated with this medication. It can however be remarkably effective in treating people with chronic schizophrenia who have not responded to. other antipsychotic medication. A number of people are now able to live in the community who were previously long term patients in hospital. Within the Trust there is a lead consultant (Dr. BBBBBB) who keeps a central register of those patients on clozapine and assesses the appropriateness of the treatment prior to the person starting the drug.

3. Indications

Management of patients and prescribing of clozapine in the community by the GP may be appropriate after one year of treatment and once the patient’s blood monitoring frequency has been reduced to four weekly. The consultant may consider approaching the GP with a view to them participating in a shared care arrangement when all the following conditions are met.

1.                  Patient’s mental state is stable.

2.                  Suitable arrangements for community care are in place.

3.                   The patient has had a stable haematological profile for one year with blood results in the normal (green) range for at least the last three months and where agreement to reduce monitoring frequency to four weekly has been obtained from the Clozaril Patient Monitoring Service.

4.                  The patient's dose is stable

5.                  The GP is happy under the arrangements 1 - 4 that he/she is able to monitor the patient, take blood every four weeks, competent in dose adjustments when agreed with the psychiatrist and where a community pharmacist is nominated by the patient, is agreeable to dispensing clozapine.

4. Dose and Route of Administration

Initiation of Clozapine treatment must be in hospital in-patients and is restricted to those patients with a normal white blood cell count and differential count. Initially 12.5 mg once or twice on first day, followed by one or two 25 mg tablets on second day. Increase slowly, initially by daily increments of 25 mg to 50 mg, followed by increments of 50 to 100 mg to reach a therapeutic dose within the range of 200 to 450 mg daily. Once control is achieved a maintenance dose of 150 to 300 mg daily may suffice. Exceptionally, doses up to 900 mg daily may be used. The total daily dose should be divided and a larger portion of the dose may be given at night.

Patients with a history of epilepsy should be closely monitored during Clozapine therapy since dose-related convulsions have been reported. Therefore, patients with a history of seizures, as well as those suffering from cardiovascular, renal or hepatic disorders, together with the elderly, need lower doses (12.5 mg given once on the first day) and more gradual titration.

5. Clinical Monitoring

By mid-1995 over 7,000 patients have been treated with Clozapine in the U.K. Approximately 4% of treated patients will develop neutropenia or agranulocytosis. If this is not detected the neutropenia can develop into the more serious condition agranulocytosis, which may leave the patient vulnerable to infection. Detection of neutropenia is achieved by regular haematological monitoring, through the Clozapine Patient Monitoring Service.

Neutropenia occurs most commonly in the first eighteen weeks of therapy. The incidence of neutropenia, after one year of monitoring, is 0.45 - 0.74%. The risk of agranulocytosis developing after one year is in one patient in 1429. The risk of agranulocytosis is of the same order as that caused by some phenothiazines, which are not currently monitored.

The Clozaril Patient Monitoring Service operated by the manufacturer. Novartis Pharmaceuticals (UK) Ltd. oversees the use of Clozapine. The function of this is to ensure the necessary blood monitoring and collation of patient details onto a centralised database. Clozapine is only supplied to patients via a pharmacist after a satisfactory blood result is obtained. The system works on the principle “no blood result, no drug". This is effective in detecting neutropenia and minimising the risk of fatal agranulocytosis.

The Clozaril Patient Monitoring Service provides routine information on the use of Clozapine. and provides 24 hour emergency medical advice.

Where a psychiatrist and (GP are happy with the overall clinical and haematological stability of the patient, the OP may, in collaboration with a community pharmacy of the patient’s choice, and subsequently registered with the Clozaril Patient Monitoring Service, take on the monitoring and care of the patient in the community under a shared-care protocol agreed with the psychiatrist.

             5. Community Monitoring Requirements

A blood sample will need to be taken at least every four weeks and sent to the Clozaril Patient Monitoring Service laboratory, where a full blood count will be performed. The specimen tubes and forms are supplied by the Monitoring Service. Blood samples should be taken and sent for analysis approximately two weeks prior to the next anticipated dispensing day, i.e. two weeks before the patient is about to run out of tablets.

Blood results will be sent by the Clozaril Patient Monitoring Service to the prescribing GP, the consultant psychiatrist, and the hospital pharmacist. The community pharmacist will also receive notification of the blood result and whether Clozapine can be dispensed.

Assuming the blood test results are satisfactory (i.e. green/normal) the OP can write a prescription for 28 days supply of tablets.

A maximum of four weeks supply of Clozapine can then be dispensed by the nominated community pharmacist previously chosen by the patient. The community pharmacist like the hospital pharmacist, will need to agree to register with the Clozaril Patient Monitoring Service and follow all dispensing guidelines.

If the community pharmacist, of the patient’s choosing, dose not wish to dispense Clozapine or register with the Clozaril Patient Monitoring Service, it will be necessary for the patient to choose another pharmacist.

In the event of a red alert’ Novartis will immediately contact the care team and advise on the appropriate actions.

(Further details on the use of Clozapine in the community are available from the Clozaril Patient Monitoring Service, Tel: 01345 698269).

A brief examination of the patient’s mental state should be performed at the time the blood sample is taken. A CPN. either from the hospital or OP surgery, should endeavor to see the patient regularly, ideally once a fortnight.

Like any patient on long term antipsychotic treatment, all else being well, the patient will need regular out-patient appointments every 3 - 6 months.

6. Side Effects

Neutropenia leading to agranulocytosis. Rare reports of leucocytosis including eosinophilia.

Most commonly drowsiness, sedation, hypersalivation. Dizziness or headache may occur. Clozapine lowers the seizure threshold and may cause EEG changes and delirium. Convulsions may be precipitated in individuals who have epileptogenic potential but no previous history of epilepsy.

Extrapyramidal symptoms are limited mainly to tremor, akathisia and ridigity.

Neuroleptic malignant syndrome has been reported.

Transient autonomic effects e.g. dry mouth, disturbances of accommodation and disturbances in sweating and temperature regulation. Hypersalivation.

Tachycardia and postural hypotension, with or without syncope, and less commonly hypertension may occur. In rare cases profound circulatory collapse has occurred, EGG changes, arrhythmias, pericarditis and myocarditis (with or without eosinophilia) have been reported, some of which have been fatal.

GI disturbances and increases in hepatic enzymes and, in rare cases, cholestasis have been reported.

Both urinary incontinence and retention and priapism have been reported.

Benign hyperthermia may occur and isolated reports of skin reactions have been received.

Rarely, hyperglycaemia has been reported.

With prolonged treatment considerable weight gain has been observed.

Sudden unexplained deaths have been reported in patients receiving Clozapine.

7. Drug Interactions

Clozapine should not be given with other drugs with a substantial potential to depress bone marrow function. Clozapine may enhance the effects of alcohol, MAO inhibitors, CNS depressants and drugs with anticholinergic, hypotensive or respiratory depressant effects. Caution is advised when Clozapine therapy is initiated in patients who are receiving (or have recently received) a benzodiazepine or any other psychotropic drug as these patients may have an increased risk of circulatory collapse, which, on rare occasions, can be profound and may lead to cardiac and/or respiratory arrest.

Caution is advised with concomitant administration of therapeutic agents which are highly bound to plasma proteins or which induce or inhibit hepatic enzymes.

Concomitant use of lithium or other CNS-active agents may increase the risk of neuroleptic malignant syndrome.

The hypertensive effect of adrenaline and its derivatives may be reversed.

Do not use in pregnant or nursing women. Use adequate contraceptive measures in women of child bearing potential.

8.            Shared Care Responsibilities

Indications for referral back to consultant

·            Amber or red blood result (note OP will have to take initial action in the case of a red).

·            Any spontaneous deterioration in mental state which cannot be managed by the OP.

·            Restarting therapy after a 48 hour break in treatment, as the dose of Clozapine must be gradually re-built again.

·            Intolerance of side effects.

·            In consideration of concomitant psychotropic prescribing.

·            Ongoing difficulty in securing monthly blood samples

·            Non-compliance with medication.

9. Patient Information

Education for patients about clozapine will be carried out by hospital staff during their first year on the medication.

The patient, and if appropriate their carer, should be regularly reminded to remain vigilent for any signs of infection, e.g. fever or sore throat, which may indicate the presence of agranulocytosis. While it is unlikely that such symptoms are related to the development of Clozapine induced agranulocytosis. an immediate blood test will be necessary to exclude the possibility. The patient should, therefore, be regularly advised to return to either their GP. or their hospital team, to seek immediate attention, if symptoms suggestive of fever occur.

10. Support and Contacts

Currently most of the patients who are on Clozapine are the responsibility of Dr.. BBBBBBBb  and the Rehabilitation Team, who can be contacted on ****** in office hours, ****** between 8.30 a.m. - 5.00 p.m. and ******** out of hours. However, other consultants may use the drug and can be contacted on the following numbers:

11.        Cost

Five patients on an average dose of 300 mg per day cost £10,350 per year.

12. Proposals

To be reviewed: (date)

 

 

 

Donated by North West Anglia Trust. May 2001.